Final Surgery Recap

And now for a more comprehensive recap of my surgery.

I had it at the same hospital where I had my mastectomy, so I had high hopes. Nothing went wrong, but being an outpatient was a different experience. My pre-surgery nurse was nice, but had no personality and a perma-frown. I tried to get her to talk or smile, no luck. She did interact with me, but she just never smiled. She took my vitals, asked all the right questions, and hooked up my IV. Just very straight and to the point, unlike many of the other nurses and techs I’d come into contact with throughout this journey.

Next I met the anesthesiologist, surgical nurse, and Dr. H. Then the anesthesiology nurse came and gave me chill out drugs, and took me away…while I still had my glasses on and before I could say goodbye to Brad! I don’t remember much else after that. I do vaguely recall moving from one gurney to another in the OR, but that’s it.

I woke up in recovery with a very dry mouth. I was given an anti-nausea patch before the surgery and one of the side effects was dry mouth. It lasted quite some time and I drank my usual post-op cranberry juice and had some ice chips. I tried to eat some crackers so I could take the pain meds, but my mouth was too dry so I stuck with the ice chips.

The pain has been intermittent. I have a pretty high pain tolerance, so it’s hard for me to judge exactly what it all feels like.

First off, no more port! So weird. It’s the smallest incision, but it’s the one I feel the most. That’s probably because I still had a lot of numbness in my chest and abdomen from the previous surgery.

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My boobs are smaller (yay!). I’ve gained weight since the previous surgery, and since abdominal fat grows faster than other fats, my boobs gained weight. Plus, my boobs were a little too big for my liking anyway, so I’m glad they are a bit smaller. And, of course, this surgery shaped them up a bit since the flaps were removed. Remember the pic of the softball looking stitches? They are gone!

My chest is a little sore, but what’s weird is the the tube from the drains is so close to the surface. It looks totally crazy.

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The incisions on my breast are just straight lines from my nipple down to my chest on each side. Pretty simple and tame looking. Right now there are steri-strips over those incisions, so once those come off, I’ll share pics. Dr. H fixed about a 10 inch stretch of my abdominal incision where the scar tissue was a little gnarly from him having to reopen it so it would heal from the inside out. That looks neat and clean, but it is also covered steri-strips.

I have three drains, one on each side of my chest and one at my waist. The ones in my chest are not producing much, but the one in my waist is. Last night was 60 ccs, this morning was 30. Each side was less than 10 this morning. I am hoping all will be pulled at my appointment on Monday, but I’ll accept whatever I can get. I certainly don’t want fountain belly again. I did not get a surgical bra or one of those tank tops that hold the drains this time, so I’ve got a sash made out of gauze that the drains are hanging from. It’s quite awkward. Last time, the drains had clips I could clip to my shirt or pants, not this time.

My appetite is fine and I have a good level of energy. I am a bit constipated from all the drugs, so I’ve been taking some kind of fiber pill to help me use the bathroom. I can’t take a shower until the drains are removed, so that’s fun. It’s a good thing I have a shower sprayer with a hose so I can clean from the waist down and wash my hair. I’ll have to use a wash cloth everywhere else. (Insert eye roll here.) I guess there has been an increase in infection related to showering with drains, so Dr. H changed his aftercare instructions. I just want to be healthy, so I’ll do whatever they say!

Not much else to report at the moment, at least nothing I can think of. I’m off work until after Thanksgiving, at which point I hope to be feeling at or close to 100%. It’s hard working with kiddos when you’re not well or don’t have full range of motion. Tomorrow, I’m going to try to go out with Brad for a little bit and do some food shopping. I’m ready to dive back into our healthy eating plan, and I figured I’d use my week off next week to get readjusted to that, even though it is the week of Thanksgiving and it seems dumb to talk about healthy eating and Thanksgiving in the same sentence. But that’s the thing about the plan he and I are following. It’s OK to take a day off or to make mistakes. It’s not going to throw us into a downward spiral of shame. It’s just one day.

So yeah, I think I’ve included everything and if you want to know more, just ask! It’s quite possible that I’ve omitted something or glazed over something else in my medicated stupor over here. You all know I’m not shy, so ask away!

Surgery is over!

All my major cancer-related crap is over! Can I get a “hell yeah?!”

Hell yeah!

My surgery was this morning, everything went well. We went a little smaller on my chest since they were a little too big before. I’m happy with the way that turned out.

Dr. H recreated a nipple on the right side, so that’s both amazing and cool. He also did the wound closure at my abdominal incision, so that looks nice and neat.

I am a bit sore and still running off the hospital anesthesia. I took a Zofran for nausea. I can’t wait to eat real food. I had a Shakeology when I woke up from my nap, it was good and full of nutrition! I think it was just what I needed at the time, chocolate with berries.

Anyway, I’m binging on Buffy the Vampire Slayer and patiently awaiting some pizza. I’ll post more about this experience when I’m less loopy.

SC ABA Conference

I had a great time at the South Carolina ABA conference in Greenville! I went with two of my co-workers, and we met our boss there. I always loved going to work conferences at one of my previous jobs. It’s so rejuvenating being around like-minded individuals and I always leave full of new ideas and feeling even more excited about my job.

I absolutely love my job. I know I’ve talked about it here and there, but I’m not sure if I’ve gone into detail. I am a Registered Behavior Technician (RBT) and I work with kids with Autism Spectrum Disorder (ASD) and other developmental disabilities. I’ve worked in this field for a year and a half, and pretty much anyone I talk to about it needs an overview. ASD is a developmental disorder; the key characteristics are social and communication deficits and repetitive and restricted patterns of behavior. ASD cannot be cured, but the symptoms can be treated (there’s still SO MUCH that is unknown). An RBT (me) is a provider of ABA therapy to children with the disorder. ABA (Applied Behavior Analysis) is the best evidenced-based practice for treatment of the symptoms of ASD. You can read up on more of this stuff at some of these websites: Autism Speaks, NIMH, or BACB.

Anyway, like I said, I love my job. I work with some amazing therapists and amazing kids. The job is so challenging sometimes, but it’s also incredibly rewarding. Hearing a child say his or her first words, respond to a request, make a request…there’s just no other word for it. It’s amazing. Being part of milestones in the lives of kids who are living with so many challenges is amazing. They’re not lucky to have me, I’m lucky to have them. I probably learn as much from them as they learn from me. They’re just incredible kids.

I’m currently a lead therapist, which basically means I’m a team manager. Each kid has a team that consists of a consultant, lead therapist, and line therapists. I started out as a line and was promoted to lead, when I had cancer no less. I have five kids at the moment, but am hoping to pick up another one in the spring. As lead therapist, in addition to providing line therapy, I also manage paperwork, graph data, do reports, and act as a liaison between the families, therapists, and consultants…a jack of all trades, really. I love the work and it keeps me very busy, which is great.

I’ve loved my job since the moment I started it. There are definitely high days and low days, but all days are great days. Initially, I felt like my job was great experience towards my graduate degree (first clinical counseling, then school psychology). I knew of ASD and ABA when I started, but I didn’t really understand the whole process, but I was willing to learn. Of course, I have a better understanding of it all now. Anyway, over the summer we did these Fun Friday social outings for the kids. They were so much fun. The kids loved them and so did the therapists. There was this one event where we took the kids to Little Gym. They had so much fun. It was wonderful watching them in their element. It was on that day that I realized I’d finally found what I wanted to do with the rest of my life.

So, for what seems like the umpteenth time, I changed my degree plans. Fortunately, I was in a place where I could just complete my education at The Citadel with masters degree in psychology. I have the course credits, I just need to complete my thesis. To become a BCBA (Board Certified Behavior Analyst), I also need to take a verified course sequence of six classes, complete experience hours (which I can do while I work, like a paid internship), and take and pass the certification exam (which is not terrifying at all).

Anyway, blah blah blah back to the conference. It was great. I’m excited. I love my job. It’s the first job I’ve ever had that doesn’t feel like work. I feel like I could learn about this stuff forever and I definitely want to work with these kids forever. I seriously can’t imagine doing anything else.

We learned stuff, met people, ate some yummy food, and just had a great time.

Now I’m home and exhausted and ready for bed! I’ll report back later after my pre-surgery vacation! One more week until my last surgery! Hooray.

Save the date…

My next and (hopefully!!!!) final surgery will be on Tuesday, November 13th! 🎉

It will be at East Cooper Medical Center, same as the last. Hopefully we’ll wake up on time this time since it’s 45 minutes away and we have to be there at 5:30. When I talked with the admissions nurse today, she said she usually hears that people get stuck in traffic, not that they oversleep. Glad I could be the first. Ha.

So this is the second stage of the breast reconstruction, revision of the abdominal incision (where there’s some serious scar tissue from when I had to get cut open), and port removal! So three parts, two surgeons, about three hours. I will probably have drains, too. Two up top and one at my belly. Yay. Not.

I’m bummed because my bestie will be in town and this is interfering with our time together, but it is what it is. We’ll just have to catch up again after. We’re going to get to spend a super fun weekend together in Columbia at a book signing, and we’re staying at a lake house which will be even more fun. So this is a crappy ending to our fun trip, but whatever. At least we get our fun trip!

In other news…

Today was Halloween and I had a good day. I saw one of my kiddos, did some pre-op stuff, and went to a Halloween party. I saw my niece, Gabby, and randomly saw some good friends of ours who were trick-or-treating with their kids. It was a nice day.

I am going with a couple coworkers to the South Carolina ABA conference next week. The conference is Monday and Tuesday in Greenville. It’s my first ABA conference, and I’m looking forward to it.

So…oncologist and more pre-op Monday the 12th. Surgery on Tuesday the 13th. Post-op on Monday the 19th. Probably another post-op sometime after that. Then I’m done!! I’ll still have the Lupron shots every four weeks, and daily meds, but that’s it.

In the meantime, I’ll be living my life.

✌🏻 ❤️

Hurricane, fishing, and not much else

Sorry it’s been a while. I’m trying to post only when I have relevant information to share, and I haven’t had any.

I did have an appointment with my surgeons last week and I’m cleared for the next stage of surgery, which is great. I just don’t have a date yet, but we’re probably looking at mid-November. I’ll know for sure (hopefully) tomorrow, when one of the schedulers returns from vacation.

We got some wind from Hurricane Michael, but that was it. Lots of knocked down trees here and there, no damage on our end. Brad had to work that day and it sucked because he has to take a tree-lined road to work and there were trees down all over the place.

We went fishing yesterday and I caught three fish! They were small and we threw them back, but we had a lot of fun. I baited my own hook, but I didn’t take the fish off the hook. I did talk sweetly to them while Brad and Chris took them off. I’m sure that helped soothe them a whole lot. 🙄

That’s Brad holding the fish, trying to get it to kiss my cheek. (He didn’t catch any fish.)

Well, that’s all for now. I’ll update with scheduling info once I have that.

xoxo

Cancer is isolating…

I had typed up this long post, then deleted it. I’m all about truth on this blog. Real, raw, truth. But I felt like the post was too “woe is me” when I feel anything BUT that.

The gist of it was that I spent a lot of time during my cancer treatment alone. A lot of time. Brad had to work, he obviously couldn’t stay home with me all the time, so I was alone a lot when I was home sick. I was alone for several of my chemo treatments. I was alone a lot in the hospital, too.

It was what it was.

So in short (very short), when you go through something like this, you find out who your friends are, and I am extremely grateful for the ones I have.

Hello there 👋🏻

I apologize for the lack of posts here lately. It’s partially because I don’t have much to say, and partially because I have been insanely busy. My classes began earlier this month and work has been keeping me busy, particularly from having to play catch up from the hurricane that never came.

Today is October 1st. Wow! I can’t believe it’s October. I feel like I say that at the beginning of every month, but it doesn’t make it any less true. Time flies. It’s my niece’s birthday. Happy b-day, Ev.

Anyway, I’ve got a couple ideas for some posts so I’ll try to spread them out over the next couple weeks since my next medical update won’t be until October 15th, since that’s my appointment with Dr JB and Dr H to talk surgery and stuff. I’ll have drains again…did I mention that after my last appointment? Ugh. You all know how much I’m looking forward to that. Should only be for a week though. Knock on wood.

Couple random things: started my clean eating again; doing yoga because anything more intense is too much; and sort of participated in the Lowcountry Heart Walk on Saturday for my niece, G (“sort of” meaning we went and then they canceled it for the weather).

Thanks for sticking with me this far! I know I’m not quite as entertaining as I once was, and I think that’s a good thing because it means my life is less drama-filled. I’ll chat again soon!

Lowcountry Race for the Cure

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This is what the 2018 Team Rack Attack looked like. Just a handful of us who joined up together today to do the Susan G. Komen Lowcountry Race for the Cure.

It was my first event. I would have loved to have participated last year, but I was chemo sick so it just wasn’t in the cards. But it’s all good because I got to do it this year and fundraise for a cause I support – hope for a world without breast cancer.

Team Rack Attack did so well with donations that we earned a tent with breakfast and treats for being within the top five. There were some yummy breakfast burritos and biscuits from Triangle Char & Bar, Starbucks coffee, and cupcakes from Cupcake Down South. So amazing of those sponsors to do all that. I wasn’t expecting any rewards for raising money, so it was a very cool surprise. We got to decorate our special little tent space, and that was fun. (It’s still not too late to donate, you can click the “Race for the Cure” menu tab and follow the instructions.)

We pinked ourselves out and had a great time. I’m looking forward to seeing what next year brings!

On a different note: I’m sick! I started feeling it on Wednesday last week – lots of sneezing and coughing up crud, also a sore throat. That stayed with me for the rest of the week until I woke up feeling horrible Friday. I managed okay today, but was exhausted. After the walk, I went home and napped, and when I woke up the sore throat and body aches were present. I’m hoping it’s just exhaustion from a super busy week, but I’m laying low and drinking tea the rest of tonight and tomorrow.

Storm Log: Day 4

Found the portable charger, right where I told Brad it was. 🙄 My dad went golfing. My mother made brownies. Brad and I are stir crazy. Will went out for a little bit for a change in scenery.

We have debris in the roadway.

And cloud cover.

Somewhere, people mowed their lawns. One of the neighborhood pools was also open.

May have made contact with a potential looter scoping out the neighborhood. Held up a sign that said “if you loot, we shoot.” (Not really, we don’t have a sign, but we will shoot.)

Watched Life of the Party with Melissa McCarthy. So funny. Snacked on chips and salsa and cheese and crackers.

Today’s Soundtrack:

Bad Moon Rising – CCR

We Didn’t Start the Fire – BJ

Bohemian Rhapsody – Q

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The sky at 7:30pm. There was a misty sprinkle of rain while I was recording.

Storm Log: Day 3

I’m calling this day three because our minds went into storm mode on Tuesday, when our area was issued an evacuation order. Mine and Brad’s works both closed, and we’ve been together ever since.

Ever.

Since.

Tuesday.

Hurricane Florence will be Tropical Storm Florence by the time it comes our way. We’ll see some wind and rain and I’m sure trees will be down. This will probably start tomorrow night. I feel like we’ve been waiting forever since things started shutting down on Tuesday. I mean seriously, all the Walmarts shut down on Tuesday!! Publix, BJs, Lowe’s, and Home Depot are still open, but Lowe’s and Home Depot have their employees blocking the entrance of the store and asking you what you want before they let you inside. We turned around and left, even if you had what we wanted (we were looking for battery powered lanterns), we don’t want to have to say some magic words just to get in the door. Either you’re open or you’re not open. Get off your high horse. We hit a small business hardware store instead, Palmetto Home Store. Their staff were nice and helpful, not a power trip to be seen. BJs was even letting people shop regardless of their membership status because of the storm, so I don’t want to hear any excuses from the home improvement stores. A guy was buying a bathtub for Pete’s sakes. What the heck was that emergency??

We stocked up on snacks and margaritas. The margaritas are so I can tolerate Brad. We’ve been together for way more than what should be considered normal at this point. He’s got some kind of whiskey or something, that’s so he can tolerate me.

We were planning to evacuate. We had our eyes set on a hurrication to Florida. But the storm weakened overnight, so we decided to stay and save our money.

So I’m writing and Brad’s watching TV. I’m hoping power stays on, but I’ve got my Kindle and iPad locked and loaded just in case.