Chemo Brain Revisited

Today I realized the importance of the after c part of this blog. I thought all the important stuff was in all the during posts. I couldn’t have been more wrong.

I worked this morning, then made lunch before I had to go to an appointment with my oncologist. As I was putting my sandwich together, my phone started to ring. It was one of the universities I requested information from, and I wasn’t going to answer. I wanted to eat my lunch in peace. But I hadn’t picked up the last couple times (because they always called me when I was at work), and I really wanted to talk to them, so I picked up.

So I answered, and we talked about the program I was interested in. I talked about my goals with finishing my masters, including my thesis and graduate certificate, and then my plans of taking the BCBA certification exam. I mentioned how I wanted to take next summer to focus on studying for the certification exam, and didn’t want to start any new education programs until the fall, at the very earliest, assuming I pass the certification exam on the first try.

I told the guy about how I was apprehensive about the certification exam because I still struggle to read and retain information due to chemo brain. That tiny little statement changed the entire course of our conversation. It turned out, the guy I was talking to is also a cancer survivor. He told me that he knew exactly what I meant about the chemo brain, and told me that he talked to his oncologist about it when he experienced it, and his oncologist made recommendations that assisted him in overcoming it. I won’t mention what his oncologist’s recommendations were, both because he had a totally different cancer and the actual treatment was irrelevant. The point is that just because my cancer is gone doesn’t mean there aren’t still going to be things that I should consult with my oncologist for.

I thought chemo brain was just something I was going to have to live with. I play games, try to read, and otherwise keep my brain engaged as often as I possibly can. I thought that would help exercise my brain back into shape. I didn’t know they were other options. Now I do.

And I think it’s important to share this information because other people might feel the same way. They may finish their treatment and think that there’s nothing else they need to do, or that there’s nothing else they can do, because the cancer is over. That’s simply not true. And these are things I may not have even considered if I hadn’t picked up the phone.

So at my appointment today I talked about two things. One thing was the chemo brain, for which he referred me to a neurologist. Dr. YB said the neurologist might have different activities and exercises for me to do to help alleviate the symptoms of the chemo brain. The second thing is the aching in my toes, feet, ankles, and knees. Whenever I get up after sitting for a while, I struggle to get moving and am so sore in those areas. Dr. YB knew exactly what I was talking about and said it was a side effect of the hormone blocker. He advised me to stay off it for two weeks, then resume for two weeks, and see how I feel. If it is the hormone blocker, then we may switch to Tamoxifen. So I’ll report back on that.

We talked about some other things, and I’ll share more about that in another post!

Making Strides Against Breast Cancer

Hello, hello!

Presently, I’m sitting in the backseat of my car while me, Brad, and his brother, Jeff, head to Charlotte for a concert. We’re going to see Breaking Benjamin (can’t resist one of their concerts if it’s within a 200 mile radius), Chevelle, Three Days Grace, Diamante, and Dorothy at the PNC Music Pavilion. It’s a three hour trip so I have plenty of time to marinate on the different ramblings in my head.

First, we’re doing the Making Strides Against Breast Cancer walk in North Charleston on October 27. I’m excited. Team More Than Ribbons is back! If you want to come walk with us, please do! I want lots of people to join! If you can’t walk but want to make a donation, that would be amazing!! Here’s the link to join our team: click here.

This is the second trip to Charlotte Brad and I have made this summer. We went up back in July for a book signing. We had a great time and even brought Barkley along. The little guy had to have surgery last month because he broke a tendon/ligament in his knee, so we didn’t feel right leaving him behind when he was recovering. He’s doing great though, it’s like there was never even anything wrong with him. Before his surgery, he was running around on three legs like he didn’t even need the fourth leg. Anyway, he goes for his six week post-op checkup next week. He’s a maniac though, so you’d never guess he had surgery.

We have a couple more weekend trips planned this year. We’ll be heading to New York for a book show next month, and West Virginia for another in November. We’re also entertaining the idea of heading to Universal Studios in Florida in October to do their Halloween stuff. Busy, busy, busy, but always looking for an adventure!

In other news, I’m taking the last two classes for my graduate certificate in the fall, beginning right after Labor Day. I sent my thesis proposal in to my adviser for feedback, and hoping to get the go ahead from him on that. I’d like to present it at a conference here in November, so that’s my completion goal. It’s my priority for the next two months, so hopefully that’ll get rolling soon.

At work, we had camp for our kiddos this summer. It’s always such a great time and it got me thinking about the long term. I volunteered to help my boss organize Social Saturdays at our clinic for our kiddos during the school year. This is something I’d love to continue to do in the future. I was thinking about what I want to do with my degree and certification once I’m finished and while I would absolutely love to continue to do home-based therapy with kiddos with autism, I think I’d also love to run a camp, too. It’s something that’s always been a little niggling thought in the back of my head, but not anything I thought I could really implement. But our camp at work has really inspired me and I’d love to do more. In fact, I’d love to start with a summer camp and grow into a year-round school for kids with autism. It’s such a long term goal, but it’s there, and when I get an idea in my head, I tend to aim high and go for it. (If you haven’t already figured that out, haha.) So I’m looking into special education and autism education doctoral programs to help make this dream a reality. I’ll keep you posted.

Ok, I’m getting a little nauseated from trying to be productive in the car and I still need to post to the More Than Ribbons website and make some fundraising notes.

xoxo