Day Full of Docs

It’ll be nice when all this slows down. I have a doctor’s appointment every week, and it’s frustrating .

When I was leaving my first appointment of the day and trying to schedule a future appointment, it was hard to accommodate the time because of work. I may be able to adjust or abbreviate my sessions, but I don’t want to do that because it creates a domino effect. I cut one short by 30 minutes, then I have to add 30 minutes somewhere else. I cancel one, I have to make it up another day. So the easiest thing to do is to schedule the doc around work.

I was drained again by Dr H, about 45 on each side. The right side had more this time than last time. I’m probably going to have to get drained again next week, blah blah blah. Next week I’ll go to his office in Mt. Pleasant, instead of the office he shares with Dr JB on Monday mornings, which is fine. It works out well with my schedule that way.

I went to the oncologist next for my infusion. I’m on cycle X of 17. Almost finished! Then we’ll talk about where to go from here as far as prevention and future treatments. I asked Dr YB about my hot flashes, issues falling asleep, and my feet.

Yep, you read that right. My feet. Why? Well because they have been so incredibly achey since around January! I guess it could have been going on for longer, but I was so inactive prior to that due to the chemo, and I was feeling so many other things, that I might not have even noticed it was an issue, or just blamed it on my inactivity. Anyway, once I’m walking, they’re fine, but it’s after I’ve been laying or sitting or driving and I get up and try to walk that they ache and hurt. So I figured it wouldn’t hurt to mention it, and see what he advises.

Dr YB wrote me a prescription for oxybutynin, which is actually a bladder medicine but works for hot flashes. One of those random off-label uses for drugs. I also got a refill for my letrozole. As for my feet, he recommended trying Aleve for 5 days to see if that helps. He said that with my hormones being messed with, it’s possible that’s why I’ve been having trouble falling asleep, so he said to give it some time and see how it goes. My nurse also suggested no caffeine after noon. I don’t have a lot of caffeine as it is, just the occasional sweet tea (since the soda I drink is caffeine free – but I rarely drink soda anyway).

So we’ll see what happens over the next few weeks until I’m due for my next infusion!

Is it hot in here?

Yowza! The last two weeks, the hot flashes episodes were off the charts. I even checked my temperature one night just to make sure I wasn’t overlooking a fever. They’re like how they were when I was going through chemo.

During the first few cycles of the Lupron, the hot flashes were just that…flashes. I’d blink and then they were gone. I thought they were a piece of cake. Ha. Hahahaha.

I should have known better. Nothing about life with C was easy, why should anything after C be easy?

I have an appointment with Dr YB tomorrow, so I’ll talk hot “flash” management with him then. That and sleep. I’ve had a heck of a time falling asleep this last week, which I don’t believe is related to the hot flashes since they don’t necessarily occur together. I forget what number my infusion cycle is tomorrow, but I know it’s close to the end. I want to say I have one or two more after this.

I also have an appointment with Dr H tomorrow. I’ll get drained again. I know this because I can tell there’s extra juice in my abdomen. Yay.

I’m restarting my clean eating tomorrow, and exercise, I’m looking forward to fueling my body with stuff that’s good for me again. I felt so good, physically, when I was eating clean before the surgery, and I wish I could have kept up with it post-surgery, but my appetite was just so off that I felt like I needed to just eat what I could.

Also, I’m creating a team and registering for the local Komen Race for the Cure. I’ll post the details here once I’ve got it all together, in case anyone is interested in joining or supporting the efforts. It’ll be Saturday, September 22.

Draining, draining, draining…

Dr H took out about 90 CCs on Monday (took me long enough to post, sorry!). It was less than before, which is good, and not as uncomfortable, which is great! He is probably going to have to keep draining me, but we’ll just take it one week at a time. I asked it there was anything I could do aside from thinking dry thoughts (I need to stop making jokes there, they don’t know what to do with me), and he said there was nothing, he just should have left a drain in, but he knew I was going on vacation…ehh, I would have kept it if I had to, but this (needle draining) is getting easier.

Everything else is looking good. My tummy incision is moving right along. Two parts are slightly gaping open, so I hold them together with butterfly bandaids. It is healing from the inside out, which is weird, but whatever. The scab finally came off, which is actually kind of nice because the incision site looks cleaner, despite the fact it’s an open hole. My right nipple is scabbed and slowly healing (aka preparing to fall off), but it’s doing what it’s supposed to do as well.

I asked about my next surgery (removal of the flaps and nipple reconstruction) and Dr H is thinking roughly September. I lost some skin around the right nipple area, so he wants to make sure it’s fully healed first. So it’ll be a little longer than the original three month wait. This is a good thing though, because I should be able to have the port removed at the same time, since my infusions will definitely be done by September. That’ll knock one surgery off my list! Yay. It’s hard to believe I’ve had three surgeries in the past year. It’s hard to believe a lot of the past year!!

Non-medical update…Brad and I had a nice Fourth of July with his family and some friends. I had too many Lime-A-Ritas, but I think their effects finally wore off after I had McDonalds for lunch. I needed the grease! Well, I probably needed water more…but whatever. Lime-A-Ritas! Yum.

So that was fun…not!

I had an appointment with Dr H and Dr JB yesterday. Everything looked pretty good, the incisions are still healing nicely.

But something had started happening over the last week. I was feeling a little bloated, and when I pushed down on the bloat on the right side of my belly, it would sort of ripple towards the left side. Like a wave… better yet, like a water bed.

I showed them this today. I was pretty sure it was fluid, but maybe it was gas?

So they did an ultrasound, and sure enough, there was a lot of fluid in my abdominal cavity.

Dr H said he was afraid we may have taken the drains out too soon. Well, he wanted the numbers to be under 30 CCs and they were, so that’s why the drains came out. I Googled, and some docs take their patients’ drains out at 40 and 50. So I’m kind of not sure what the proper solution would have been with that.

Granted, I wouldn’t have been happy to be traveling on vacation with the drains, but if I needed to have them in for my health, then they would have stayed in. Period. So I’m not sure how I feel about that, but what’s done is done.

So I was drained today with a huge needle, and several stabs on my left and one on my right. He took out about 190 CCs of fluid. That’s like a cup of fluid, check your Pyrex! It’s an average of 11 CCs a day since I had the drains removed on June 8th. Of course, I’m sure there was a gradual decline, and I’m not still producing that much. I’d be surprised if I need to be drained again next week, but he seems to think so.

It hurt. I’m still a bit numb around there, but the needle pinched the skin pretty bad. I don’t want to have to do that again.

Please send dry thoughts my way…

Post-Vacation Blues

I had a great time on vacation. Getting to spend some time with Brad without work and doctors and having to adult was wonderful.

I ate three burgers (one of the restaurants at the resort has the best burgers I’ve ever had in my life, no lie) over the course of the week. That’s about two more burgers than I’ve had so far this year. They’re so good. If you find yourself at Orange Lake Resort in Kissimmee, hit up Legacy Grill for a Smokehouse Burger. Ah-mazing.

I also ate way too much chips and salsa at Chuy’s, and let’s not forget the margaritas. Yum. I had bought Malibu rum because that’s sort of my go-to alcoholic beverage – I like it in Diet Coke or fruit juice. But I had a margarita at Chuy’s, then cheap margaritas at the resort during happy hour, and I fell in love. I think tequila does that to you. Well, I guess it’s a love/hate thing since tequila kicks some people’s butts.

I read, was totally lazy, and drove the cart while Brad golfed one day. It was a nice time.

So I’m home and this week is back to reality! I’m happy to be home with my pup, she missed us and we missed her. I think our best vacation ever was when we went to the Outer Banks and were able to take her with us. Pets deserve vacations, too.

I had an oncologist appointment this morning, got my Herceptin and Lupron. Nothing new to report there. Everything is “normal” there.

I’m returning to work today for real. I’ve got a few line therapy sessions this week, and I’m looking forward to that.

So I’m feeling good and healthy. I’ll be thankful when the rest of the soreness is gone. I’ll also be thankful when I can start exercising again and lose this ache I’ve got in my joints again. I hate that I went steps forward and then steps backward in regards to activity, but I know that extra strength I built up before surgery has helped me a lot over the last several weeks.

Being at the oncologist now is weird. I remember going and dreading what I knew was to follow. I don’t have that anymore, which is great – not complaining over here! It’s just weird because I’m in and out of there, and I used to see some of the same faces, but now there’s often new faces in various stages of treatment, and it’s weird. I want to say something, something motivating, because I was where they were, but I don’t know their story. I don’t know if they’ll be where I am now one day, or if their situation is more dire. So I don’t want to pull something straight off one of those top-ten-not-to-do lists for cancer patients. So I just keep to myself and smile.

But I want to do more. One day I was there and someone had put together little comfort packages and handed them out to all the chemo patients. I think I’m going to do something like that. Put together a list of things that truly gave me some comfort during my chemo and make little care packages to hand out. There are other, grander things I’d like to do, but for now this might just do. Little things mean a lot, at least they did to me. So maybe these care packages will brighten someone’s day.

Free at last!

I finally got my last drain out today! Phew!

When I went to the doctor on Monday, I was still draining too much. I had to go below 30 and I was around 35/40. So I willed all the good energy and whatnot around me to make the numbers go and stay down, and they did. I was able to squeeze in an appointment to have them removed before we left for our vacation today.

I kind of don’t know what to do with myself without it. I’m still accommodating for it…pulling my shirt down on that side, making sure I have some extra space over there.

I was afraid it would hurt coming out since it’s been in there for a month, but it didn’t. It hurt a little when Dr H snipped the stitches because it had scabbed, but other than that I didn’t feel the tube come out of my belly or anything.

I worked a little this week doing some paperwork stuff for the kiddos whose teams I’m managing this summer. It was nice to get out of the house and feel like a contributing member of society again. And seeing the kids is always great! I’ve missed them.

So we’re on vacation this week! Driving down to sunny Florida as we speak. Well, we’re in rainy Georgia at the moment, but we’re ending in sunny Florida!

Three down, one to go…

So this is a little late, but I had my follow up appointments with Dr H and Dr JB on Tuesday and Wednesday.

Dr H – Drain removed from left hip. Hopefully right hip drain will slow it’s roll, and the numbers will be low enough for it to be removed at my appointment on Monday. Seems like I’ll be losing my right nipple, it’s back to its black color regardless of the ointment/Vaseline. I’m ok with that. Dr H said we can reconstruct that later on, if I want to. My tummy wound is opening a little bit, but not a lot. (Seriously don’t Google it!)

Dr JB – Pretty much said the same stuff as Dr H. I did ask about these tiny little blister bumps I have around my chest. It seems that the surgical bra, that I have to wear like all the time, is irritating my skin. Yay! So I’m trying to give myself breaks from it, and I’ll wear a tight tank top to keep things contained instead. They also recommended lotion for the rash.

It’s just been a blah week for me. Lots of emotional ups and downs. I’m ready to go back to normal, you know? This has been dictating my life for several months, and I want to dictate my life again. I want to be able to go run errands and not be exhausted. I want to work! (Which I’m doing a little of next week whether anyone likes it or not!)

The week after next we go on vacation. I’ll be chilling poolSIDE for a week, unable to actually get in the pool due to my wounds not being fully closed. When we get back from the trip, I plan to return to work. I’ll have an appointment with Dr YB for my infusion and Lipton shot Monday the 18th, and I’ll probably have a follow up with the surgeons that same day.

I’m anticipating being in much better shape by that point. I think the key is going to be doing a little each day and gradually building myself up. I think I’m being too sporadic, and that’s the problem. Like going 75% one day, 50% the next, then 100%, 0%, and then back to 50% isn’t helping. It’s inconsistent and I think it’s confusing my body. So I’m going to try to start small and keep going up. I don’t feel like I’m pushing myself too far, I just feel like I haven’t been building myself up, I’ve just been randomly diving in, depending on my mood.

Anyway, something else to note is that I haven’t had much of an appetite post-surgery. I’ve had hunger, but I’m not 3-square-meals hungry. Like it’s after 1, I haven’t eaten, and I’m not even a little hungry. So, needless to say, I haven’t been sticking to my eating plan. I’ve been trying to focus on protein when I do eat, since I know I’m not getting a good sampling of nutrients and that’s the key nutrient for healing. I’m certainly not starving, I do get random cravings throughout the day and snack. I get late night cravings, too, and I have healthy snacks like fruit. I always eat dinner, it’s just breakfast and lunch are sometimes a wash. I am also having my superfood shake every day, which helps with protein and other nutrients. So hopefully my appetite will sort itself out soon and I can get back on track with nutrition!

Plastics Post-Op

I went to see Dr. H on Monday for my post-op. He said everything is looking very good.

He removed the upper drains (yay!), and left the lower. I have another appointment next week and those will probably come out then. They’re still putting out enough gunk to keep them around a bit longer, which is fine by me because they weren’t hurting me the way the chest drains were.

My right nipple needs to get it’s act together. It was super dark in the hospital, like almost blue-black, and it has since lightened, significantly actually, due to me applying lotion to it on the regular. Apparently that’s not uncommon. The left nipple is a little blistered, but again not unusual. That one gets some ointment. So I’d like for them to go back to normal, any day now. That’d be great. 👍🏻

The tummy incision is doing fine. There’s a spot in the center that is likely to experience necrosis. Again, not unusual. Apparently when the skin and tissue is pulled super tight like that, it’s possible that there will be an interruption to blood flow, causing some tissue to die. So basically if it dies, they’ll take care of the wound (removing nasty tissue), pack it, and just keep taking care of it until it heals. He said that whole process may be a month. But we’ll watch and see what happens because the only thing I know with certainty is that anything can happen.

I felt a slight pinch when the drain was pulled out on my right side, otherwise I honestly barely felt it. I was also still on the cycle of pain meds, so there’s that. I felt nothing on my left side. Didn’t even feel weird. Wounds were covered with a bandaid. No big deal.

Kind of bummed about the possible necrosis going on around my gut because my already slim chance of being able to hit the pool when I go to Florida just got slimmer. So boo on that, but I’m alive and cancer free, so that’s pretty cool, too.

I think that’s about it as far as updates go. I can’t think of anything that’s occurred over the last couple days that’s worthy of mentioning.

Oh, there is just one small thing.

That small little chart is of my bowel movements since being released from the hospital last Sunday. Holy medications, people! Needless to say, I’m working on softening that stool on a regular basis.

I will say one thing though. Before cancer, I prided myself on my regularity. I’d eat, poop, eat, poop, etc. Then chemo happened, and I never thought I’d see a solid crap again. Then after chemo things started to get tougher (consistency, not physical strain), but still not exactly solid. But now…things are solid. This is noteworthy stuff right here. It might not be occurring as often as we’d like, but it’s occurring!

Officially Cancer Free! Like for real, this time.

I may have jumped the gun in announcing that I was cancer free back in January.

It was the initial thought after the lumpectomy, that whatever cancer was left after the chemo, was removed during the lumpectomy. But when the pathology cane back for that, the margins weren’t great, so it was assumed some was left behind. Not a big deal since the mastectomy was in the works anyway.

Fast forward to today, when I saw Dr JB and got the results of the mastectomy pathology, and now we know it’s really gone! There was even more left behind from the lumpectomy than they’d initially assumed, but that was completely removed and the margins were great.

So hooray! I can officially say I’m cancer free! ❤️

Feels good.

Physical Therapy

I’ve had a few physical therapy sessions now. We do various exercises to stretch my right shoulder, and then started doing the same with my left since I fell in the jump castle at my niece, Gabby’s, birthday party, and super stretched that side. They did say I probably increased the range of motion on that side, though…so there’s that. Everyone got a good laugh. Yay, I’m funny.

Anyway, the stretches feel nice, and they’re easy and practical enough that I can do them at home as well. They’ve also told me that they don’t usually get people who come in who are already exercising, so that’s pretty cool. I guess most of the time people are injured, so they can’t exercise.

I’ve been taught some simply lymphatic massage techniques, too. Ways to sort of wake up the lymph system, particularly on my right side where some of the lymph nodes were removed.

The exercises are not strenuous at all, but I can see how they may become so after I’ve had the surgery and am sore in the shoulder area.

So, surgery is just a few days away now and I’m doing my best to stay active and energized! And positive, of course.