More fluid…

This week, Dr. H took out about 80 CCs combined from both sides. Good news, it’s less than last time! Bad news, there’s still fluid. Not much we can do but wait. Wait and wait and wait some more. There’s nothing I’m doing or not doing, it’s literally a waiting game at this point.

He said everything else looks good, so that’s good. I’m still hopeful that we’ll be on target for my final surgery in September. My outer breast tissue/skin just needs to finish healing. It’s getting there.

I’ve been on a movie kick lately. I watched Thor: Dark World and The Longest Ride and The Best of Me, all through Amazon Prime. I’ve also read a couple Karina Halle books. I’ve been busy with appointments and work, so I’m just enjoying these quiet and brainless moments.

Ohh, but I’m not sure if I mentioned my wonderful day on Friday and I just have to! For those of you who don’t know, I work with kids who are on the Autism spectrum. I am a Registered Behavior Technician, and I do ABA therapy (applied behavior analysis). So I work with kids and have several therapy sessions each week. On Fridays over the summer, the company has arranged group social events for the kids who have full-day availability on Fridays, and whose parents sign them up. One of the stops for our Friday social was The Little Gym, and it was amazing! The kids had such a fantastic time, it made my heart smile. Seeing them in their element like that, it was just the absolute best. I just had to share.

Little oncologist update: I had my Lupron shot Monday. My arm is still a little sore. Waa. I didn’t see Dr. YB, I only see him on infusion day, so I didn’t get to give him an update on the symptoms I was whining about last week, but I’ll share here. I have only had one hot flash episode, and it wasn’t really a hot flash, it was like it wanted to be a hot flash but couldn’t quite get there. And it lasted a while…it kept me awake. Annoying. But other than that, the drugs seem to be working. Yay!

I get asked occasionally if I mind if people share my blog with their friends or family, and I don’t mind at all. Please feel free to share this with anyone who may want to read it. I know there’s not much going on here lately (thank God!), but some of the past posts may be of value to someone.

Day Full of Docs

It’ll be nice when all this slows down. I have a doctor’s appointment every week, and it’s frustrating .

When I was leaving my first appointment of the day and trying to schedule a future appointment, it was hard to accommodate the time because of work. I may be able to adjust or abbreviate my sessions, but I don’t want to do that because it creates a domino effect. I cut one short by 30 minutes, then I have to add 30 minutes somewhere else. I cancel one, I have to make it up another day. So the easiest thing to do is to schedule the doc around work.

I was drained again by Dr H, about 45 on each side. The right side had more this time than last time. I’m probably going to have to get drained again next week, blah blah blah. Next week I’ll go to his office in Mt. Pleasant, instead of the office he shares with Dr JB on Monday mornings, which is fine. It works out well with my schedule that way.

I went to the oncologist next for my infusion. I’m on cycle X of 17. Almost finished! Then we’ll talk about where to go from here as far as prevention and future treatments. I asked Dr YB about my hot flashes, issues falling asleep, and my feet.

Yep, you read that right. My feet. Why? Well because they have been so incredibly achey since around January! I guess it could have been going on for longer, but I was so inactive prior to that due to the chemo, and I was feeling so many other things, that I might not have even noticed it was an issue, or just blamed it on my inactivity. Anyway, once I’m walking, they’re fine, but it’s after I’ve been laying or sitting or driving and I get up and try to walk that they ache and hurt. So I figured it wouldn’t hurt to mention it, and see what he advises.

Dr YB wrote me a prescription for oxybutynin, which is actually a bladder medicine but works for hot flashes. One of those random off-label uses for drugs. I also got a refill for my letrozole. As for my feet, he recommended trying Aleve for 5 days to see if that helps. He said that with my hormones being messed with, it’s possible that’s why I’ve been having trouble falling asleep, so he said to give it some time and see how it goes. My nurse also suggested no caffeine after noon. I don’t have a lot of caffeine as it is, just the occasional sweet tea (since the soda I drink is caffeine free – but I rarely drink soda anyway).

So we’ll see what happens over the next few weeks until I’m due for my next infusion!

Is it hot in here?

Yowza! The last two weeks, the hot flashes episodes were off the charts. I even checked my temperature one night just to make sure I wasn’t overlooking a fever. They’re like how they were when I was going through chemo.

During the first few cycles of the Lupron, the hot flashes were just that…flashes. I’d blink and then they were gone. I thought they were a piece of cake. Ha. Hahahaha.

I should have known better. Nothing about life with C was easy, why should anything after C be easy?

I have an appointment with Dr YB tomorrow, so I’ll talk hot “flash” management with him then. That and sleep. I’ve had a heck of a time falling asleep this last week, which I don’t believe is related to the hot flashes since they don’t necessarily occur together. I forget what number my infusion cycle is tomorrow, but I know it’s close to the end. I want to say I have one or two more after this.

I also have an appointment with Dr H tomorrow. I’ll get drained again. I know this because I can tell there’s extra juice in my abdomen. Yay.

I’m restarting my clean eating tomorrow, and exercise, I’m looking forward to fueling my body with stuff that’s good for me again. I felt so good, physically, when I was eating clean before the surgery, and I wish I could have kept up with it post-surgery, but my appetite was just so off that I felt like I needed to just eat what I could.

Also, I’m creating a team and registering for the local Komen Race for the Cure. I’ll post the details here once I’ve got it all together, in case anyone is interested in joining or supporting the efforts. It’ll be Saturday, September 22.

Oncologist Update

I had my regularly scheduled appointment with my oncologist earlier this week and forgot to post an update. I guess it’s a good thing I’m keeping busy enough to forget to post…or a bad thing that I can’t remember to do it? Ha, regardless…here it goes.

As far as the oncologist goes, I left off with Dr. YB wanting to check my hormone levels and possibly start me on a shot. So Monday was a follow up to that. My hormone levels indicated that I’m already post menopausal, so that’s cool. The shot, Lupron, is a hormone therapy. I’ll be getting it for two years. After the two years is up, I’ll start Tamoxifen, which is another hormone therapy. Apparently the Lupron has better results on people my age as it completely shuts down the ovaries, versus just blocking the estrogen receptors. In another week, I’ll start a Femara pill, which will complement the Lupron.

Side effects: hot flashes. I had the shot about a week ago and I haven’t had any major hot flashes. Hot flashes were a big thing for me during chemo, so maybe I’ve gotten used to them. I don’t know. I was doing a work thing today and the woman I was with said it was chilly in the room we were in and I was warm. I’ve always ran sort of cold, so maybe I’m just on a permanent temperature change now.

So the shot could have gone in my butt cheek, but fortunately it was a small enough dose that it went in my arm. But man, it was sore! The shot itself didn’t hurt. I barely felt it, but it achhhhhhhed afterwards. But only when I moved my arm in a certain way…so naturally I kept moving my arm in that certain way to make sure it still hurt or something?

The downside of this shot is that it’s on a four week cycle, so while I’m finishing up my cycles of Herceptin, I’ll be hitting the oncologist two weeks in a row occasionally. Like April 9th and April 16th. At least the shot days will be brief.

I’ll update some more if anything changes! On another note, because we all know how much I just love talking about bowels, I’m still not quite regular. It’s very frustrating and I’d really like to have some normal BMs one day! Ugh.

Hey there

Sorry it’s been a few minutes since I’ve updated. I really haven’t had much to say.

I did see my oncologist the same day as the surgeon. He sent me for a bone density scan, or a dexa scan. The reason for this is because he’s considering a shot or a pill to battle out that little bit of cancer that stayed behind. He guessed that what didn’t go away was estrogen fueled, and my treatment was geared a little more towards progesterone. Or something like that…it’s been a little while and I don’t quite remember now. Anyway, because the add-on treatment would be more hormone stuff, he wanted to check my bone density.

So that wasn’t a difficult scan. I went to the same place I went for my mammogram. I laid on a table, they scanned my hip area and lower spine. There was something shaped almost like an arm that arced partway over the table, and that’s what scanned me. I’ll know those results at my appointment on the 26th.

My only side effect of the Herceptin this cycle was hot flashes. I hate them so much, but it was lovely not having to deal with anything else, and to be feeling progressively better day by day. I swear I’ve been making up for the flavor/texture challenges by eating anything and everything. Ha…not much change there. I did have a couple days of heartburn, but that was probably a result of my wonderful diet, not my treatment. I haven’t taken medication in a long, long time!!

I feel…dare I say it…normal!

Seriously, aside from my leg muscles being so sore from lack of use and my feet being swollen, I feel great! It’s wonderful.

I’ve been to both of my classes two weeks in a row. I don’t think I’ve done that since September! I’ve been working, too. I subbed a couple sessions with some great kiddos today, and I’ve been doing some contracted/as needed office work for an old boss, too. I finally feel like I’m contributing again (or will be once I get paid), and it feels nice! It’s also nice to feel like I have a little bit more purpose.

Things are kind of quiet over here, so I won’t bore you. You’ll probably hear from me next on the 26th, after my next appointments, unless something exciting happens between now and then.

Oh! I’ve got peach fuzz on my head! 😁 I wonder what my hair will be like when it grows back…

The Crappiness Has Set In

I’ve struggled this week, mornings in particular. Sore throat, low grade fever, stuffy nose, runny nose, stomach issues…it’s almost over.

Almost. Over.

This is the beginning of hell week for me, and it’ll last about another week. Then I have one more cycle of chemo and it’s all over.

There will be other issues then, I’m sure. Surgery, recovery, etc.

I feel like those problems will be nothing though, compared to all this chemo sick.

I got satin sheets. My chemo nurse this week suggested trying them for the hot flashes since they tend to be cooler than cotton sheets. I’m laying on top of them, having a hot flash, so we’ll see about that.

Something funny I remembered about chemo day this week…I sat next to a nice lady who also has breast cancer, hers is triple negative. We claimed the space between us as a neutral zone. Anyway, moments after we introduced ourselves, like less than two minutes, I forgot her name, and she was calling me Amy.

It was kind of a relief to actually experience a fellow chemo brain.